Researches funding opportunities and develops grant proposals, letters of inquiry, applications, and reports for a rare disease nonprofit. Collaborates with stakeholders to gather program, research, financial, and impact information; manages grant calendars, deadlines, submissions, reporting requirements, funder communications, and proposal revisions. The role supports institutional fundraising and communicates the organization’s priorities and impact to prospective funders.
We are looking for an experienced Grant Writer (Freelance, Remote) to support a nonprofit organization dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease. The organization raises funds to advance scientific research and treatments, support affected individuals and families, and strengthen the global Barth syndrome community.
The ideal candidate has a strong track record of researching funding opportunities and developing compelling, successful grant proposals for nonprofit, healthcare, rare disease, medical research, or patient advocacy organizations. Through strategic prospect research and high-quality proposal development, this role will help strengthen the organization's institutional funding pipeline and clearly communicate its impact, priorities, and funding needs to prospective funders.
Responsibilities- Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
- Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
- Collaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applications.
- Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
- Support grant reporting, funder communications, and proposal revisions as needed.
Requirements
- Strong track record of developing successful grant proposals and securing institutional funding.
- Significant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectors.
- Strong understanding of grant prospecting, funder research, proposal strategy, and institutional fundraising.
- Strong grant research, proposal writing, storytelling, editing, and communication skills.
- Highly organised and able to manage multiple applications and deadlines independently.
Similar Jobs
Healthtech • Software
Part-time grant and proposal writer responsible for identifying federal funding opportunities, analyzing NOFOs/RFPs, and producing compliant, persuasive grant narratives and budgets. Manage proposal lifecycle including registrations (SAM.gov, UEI), stakeholder coordination, submission through federal portals, and post-award reporting and audit readiness. Focus on Medicare/Medicaid, CHW programs, rural health, value-based care, and healthcare partnerships.
Top Skills:
Agency-Specific PortalsFederal Application PortalsGrants.GovProcurement SystemsSam.GovSf-424Uei
Social Impact
Volunteer grant writer to research and track philanthropic opportunities, assist with grant applications and letters of inquiry, document outreach and applications, and collaborate with fundraising to align with financial goals. Flexible remote role, ~3–5 hours/week.
Information Technology • Software
Lead grant research, write LOIs and applications, review drafts for nonprofits, manage delivery across 10–15 partners, use AI to accelerate quality, and improve grant support processes.
Top Skills:
Ai Tools
What you need to know about the Los Angeles Tech Scene
Los Angeles is a global leader in entertainment, so it’s no surprise that many of the biggest players in streaming, digital media and game development call the city home. But the city boasts plenty of non-entertainment innovation as well, with tech companies spanning verticals like AI, fintech, e-commerce and biotech. With major universities like Caltech, UCLA, USC and the nearby UC Irvine, the city has a steady supply of top-flight tech and engineering talent — not counting the graduates flocking to Los Angeles from across the world to enjoy its beaches, culture and year-round temperate climate.
Key Facts About Los Angeles Tech
- Number of Tech Workers: 375,800; 5.5% of overall workforce (2024 CompTIA survey)
- Major Tech Employers: Snap, Netflix, SpaceX, Disney, Google
- Key Industries: Artificial intelligence, adtech, media, software, game development
- Funding Landscape: $11.6 billion in venture capital funding in 2024 (Pitchbook)
- Notable Investors: Strong Ventures, Fifth Wall, Upfront Ventures, Mucker Capital, Kittyhawk Ventures
- Research Centers and Universities: California Institute of Technology, UCLA, University of Southern California, UC Irvine, Pepperdine, California Institute for Immunology and Immunotherapy, Center for Quantum Science and Engineering
